It has been way too long since I have blogged but I have good reason. Where have I been? I ask myself that same question some days. About a year and a half ago, I found out I had Hg(Mercury) poisoning. I believed having a diagnosis that could explain these crazy symptoms was the answer I needed and it provided some hope in healing at some point in the future. Well, I was wrong.
The VA had scheduled me for an MRI after the Hg poisoning diagnosis, first available was four months out. That is just the way it goes at the VA. I had an MRI and then also an MRA because I was having some specific symptoms and they wanted to rule out a stroke or aneurysm. I drove myself to Cape Coral VA hospital for the MRI thinking it would be no big deal. Less than five minutes in of holding very still and thinking I was calm, my heart starting beating rapidly(a daily issue in recent months) and I could not catch my breath. So I pushed the emergency button they give you and they had to stop the MRI and restart once I calmed down. I was able to get it done, but I asked for medication from my nurse practitioner so the MRA I had scheduled in a few weeks would run smoother. That was in June and finally September rolls around for my appointment with the neurologist. Shawn insisted going with me even though a huge fight made me want to go without him. (Fights occur when your mind and body start failing you and the people around you cannot understand how much pain you are in or might not even believe you. Either way you feel alone and scared so you can get very defensive.) All I wanted was answers and this neurologist made my day even worse. It was not what she had to tell me but it was how she “handled” me. Let’s just say her bedside manner was the worst I had ever experienced in my life! She was belittling, condescending, and dismissive to any of the symptoms I shared with her. And despite my vast list of debilitating symptoms and various lesions on my brain, neck, and spine I left there with a diagnosis of perimenopause!!!! WTH!!! By the grace of God, she had decided to run tons of tests on me to hopefully rule out other possible illnesses.
Results came on a couple tests a few weeks later. Things work so different in the VA. The mean neurologist’s assistant(who was incredibly nice) called to explain some of the results that she was permitted to( a recommendation to see the gastroenterologist to explain my results about my GI issues- possible Celiac or Chrohns disease) and then said another neurologist would be calling to explain the rest( the meanie was on vacation). This other doctor was so kind that I could feel his heart trough the phone. He explained as much as he could and then said that he was referring me to the Infectious Disease Specialist for the VA in St. Petersberg, FL. He believed that it was not MS but possibly Lyme Disease. What???